PD Community

National, Regional and Local Organizations

National Organizations

The organizations listed alphabetically here are not-for-profit groups that support and serve the Parkinson’s community.  If you would like your organization added to this list, please email us at info@survivingadversity.com.

American Parkinson Disease Association, Inc.
Website: www.apdaparkinson.org

National Parkinson Foundation
Website: www.parkinson.org

Parkinson’s Action Network (PAN)
Website: www.parkinsonsaction.org

Parkinson’s Disease Foundation
Website: www.pdf.org

Parkinson Society Canada
Website: www.parkinson.ca

The Michael J. Fox Foundation for Parkinson’s Research
Website: www.michaeljfox.org

The Parkinson Alliance
Website: www.parkinsonalliance.org

The Parkinson’s Institute
Website: www.thepi.org

The Parkinson’s Resource Organization
www.parkinsonsresource.org

Regional Organizations

Brooklyn Parkinson Support Group
(DANCE CLASSES by Mark Morris Dancers)
www.brooklynparkinsongroup.org/

Dallas Area Parkinsonism Association

http://www.daps.us/

Michigan Parkinson Foundation
http://www.parkinsonsmi.org/index.asp

Muhammad Ali Parkinson Center
www.maprc.com/home

Northwest Georgia Parkinson Disease Association
www.gaparkinsons.org

Northwest Parkinson’s Foundation
www.nwpf.org

Ohio Parkinson Foundation, Northwest Region
http://www.nwoparkinson.org/

Parkinson Association of Central Indiana
http://www.paaci.org/

Parkinson Association of Kentucky
http://www.pscky.org

Parkinson Association of the Carolinas
http://www.parkinsonassociation.org/

Parkinson Association of Western New York
http://www.parkinsonswny.com/

Parkinson Chapter of Greater Pittsurgh
http://www.parkinsonpittsburgh.org/parkinson.html

Parkinson Society Ottawa
www.parkinsons.ca

Parkinson Support Groups of Upstate New York
http://www.parkinsoncanal5k.org/

Struthers Parkinson’s Center–Minnesota
http://www.parknicollet.com/methodist/parkinsons/

Wisconsin Parkinson Association
www.wiparkinson.org

Foundations/ Fundraising / Resources

CHAPTERS FROM SURVIVING ADVERSITY—living with Parkinson’s disease

Davis Phinney Foundation—Chapter One
www.davisphinneyfoundation.com

Shelby Hayter—Chapter Thirteen
Pass The Baton for Parkinson’s
www.ohri.ca/prc/

Resources

Viartis – Parkinson’s Disease News
http://viartis.net/parkinsons.disease

Clinical Trial Websites:
www.pdtrials.org
and
www.clinicaltrials.gov

Motivational & Inspirational Speaking
From A Parkinson’s Patient Perspective
Todd Bischoff
www.PDTALKS.com

Parkinsonian Links
by Arthur Hirsch
http://www.fortunecity.com/meltingpot/farley/817/blynx.html

Books, Music, Poetry and Others

f you have an item that you would like linked to our site, please email us at info@survivingadversity.com

CHAPTERS FROM SURVIVING ADVERSITY—Living with Parkinson’s Disease

Knowlton Nash—Chapter Three
Books:
The Microphone Wars: A History of Triumph and Betrayal at the CBC
Kennedy and Diefenbaker: The Feud That Helped Topple a Government
Cue the Elephant: Backstage Tales at the CBC
Trivia Pursuit: How Showbiz Values Are Corrupting the News
The Swashbucklers: The Story of Canada’s Battling Broadcasters
History on the Run
Visions of Canada
Times to remember: a Canadian photo album

John Ball—Chapter Four
Autobiography: Living Well, Running Hard
www.teamparkinsonla.org

Janet Sinke—Chapter Five
Books:
Ten Lessons Learned
Grandma’s Treasure Chest
I Wanna Go to Grandma’s House
Grandpa’s Fishin Friend
Grandma’s Christmas Tree
www.mygrandmaandme.com

Steve Bohannon—Chapter Twelve
Selected Poems
www.pdyoungatheartsupportgroup.org

Dr. David Heydrick, motivational speaker, author and Creator of The Parkinson’s Pyramid—Chapter Sixteen
NEW DVD now available
www.pyramidofhealth.org

Patricia Sherrick—Chapter Twenty-Two
CD: He Gives My Heart Its Song
Poetry: The Little Lady and the Lord

Email: info@survivingadversity.com

Robbie Tucker—Chapter Twenty-Six
CDs:
The Ledden Street Sessions
Songs from apartment #12
www.robbietucker.com

Bill Barnewitz—Chapter Twenty-Eight
Newly released CD: 
Long Road Home
www.wiparkinson.org

Additional Books/Music/Poetry/DVDs

Boys of Summer, Tour 2004
an award-winning documentary about a father and son traveling the country to see baseball games in every ballpark over the span of two months.  The father is living with Parkinson’s disease.
www.baseballdoc.com

PD Creativity.org features artwork created by PWPs, and the artists’ inspiring thoughts about how their creativity sets them free, helping them transcend the physical and emotional challenges of Parkinson’s.
www.PDCreativity.org

Editorial Cartoons by Peter Dunlap-Shohl
http://editorialcartoonists.com/cartoon/browse.cfm/Dunlap

Other Sites of Interest—not PD related:

Dave Carley—playwright and brother
www.davecarley.com

Jan Carley—certified executive coach and sister
www.creativecoachinggroup.com

John Carley—architect and brother
www.johnrobertcarleyarchitect.com

Victoria Lister Carley – sister in law
www.victorialistercarley.ca